We wanted to share news of an upcoming powerful documentary on the experience with Epidermolysis Bullosa (EB). The film centres on Emma, a 40‑year‑old Irish woman living with EB, and is produced by Colin Farrell, who completes a marathon and is joined by Emma for the final 4kms. The 4kms represents the four decades Emma has lived with EB and provides a glimpse into daily life with EB for Emma and her family. It’s already raising funds in the UK and hopefully will help with the amazing work of DEBRA Australia | Working for a life free from pain here in Australia, with whom we have worked alongside over many years. You may need to grab tissues, but it’s such important awareness raising: https://www.youtube.com/watch?v=ApBoWNQF7c4
Awareness of Epidermolysis Bullosa (EB) now has Colin Farrell on the case…
